For People with FASD, Parents and Carers

Tailored information relevant for individuals with Fetal Alcohol Spectrum Disorder (FASD), families and carers

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Like all of us, people with FASD have strengths and challenges, and hopes and dreams.

While life can be challenging for people living with FASD, it is important to recognise the successes – small step-by-step.

Getting the right diagnosis and support, and understanding the challenges that having FASD brings, is crucial to set people with FASD – and their families – up to thrive.

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What is Fetal Alcohol Spectrum Disorder?

Learn more about what FASD is and the challenges that people with FASD may face

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FASD Assessment and Diagnosis

Learn more about the assessment and diagnosis process for FASD in Australia and why a diagnosis is so important.

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Brain Interactive

Learn about the ten neurodevelopmental domains involved in the diagnosis of FASD.

NOFASD Australia

The National Organisation for Fetal Alcohol Spectrum Disorder (FASD) provide:

  • Support for individuals/parents/caregivers/families before, during and after a diagnostic assessment.
  • Free online and telephone support via a helpline.
  • ‘Families Linking with Families’ support group program, which brings together families who are caring for a child or young person with FASD
  • Resources for individuals, parents/caregivers and families.
  • Education and training workshops for a wide range of audiences across Australia.

Contact:

National Helpline: 1800 860 613

Contact form

Families Linking with Families Program

Visit NOFASD
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Russell Family Fetal Alcohol Disorders Association

Russell Family Fetal Alcohol Disorders Association (rffada) is a not-for-profit health promotion charity.

Their mission is to support families, to provide information, training and education to increase the capacity of communities, organisations and individuals to support those people living with FASD to live to their full potential.

Visit rffada
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Parent and Carer Perspectives

Vanessa Spiller is a Clinical Psychologist raising awareness about FASD. She also shares her experiences as a parent of a teenager living with FASD. This video features some footage of her presentation at the 2nd Australasian FASD Conference 2018.

Vanessa's Story: Clinical Psychologist and parent

Dr Vanessa Spiller is a Clinical Psychologist raising awareness about FASD. In this video she shares her experiences as a parent of a teenager living with FASD.

Anita is a social worker and parent to three teenagers, two of whom have been diagnosed with FASD

Anita's Story: Social worker and mum

Anita is a social worker and parent to three teenagers, two of whom have been diagnosed with FASD. In this video, Anita and her son Dima share their experiences and encourage health professionals to work in partnership with families to bring about positive solutions.

Counsellor Kath Thomas offered personal insight into her own struggles while caring for two children living with FASD.

Kath's Story: Caring for Carers' mental health

Counsellor Kath Thomas offers personal insight into her own struggles while caring for two children living with FASD.

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Service Providers

Find health professionals and services with FASD experience and expertise.

Services Directory
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Support and training
National Disability Insurance Scheme
National Disability Insurance Scheme

Information about how a FASD diagnosis can be supported by NDIS funding.

Resources
Resources

A collection of Australian and international videos, websites, online toolkits, booklets and fact sheets.

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Videos hub

A video compendium of resources and lived experience stories.

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Disclaimer

Information provided on the FASD Hub is for educational purposes only and is not meant to substitute for the advice of a doctor or other health professional. You must not rely on this website as an alternative to seeking an appointment with a health professional. If you have concerns about your own health or that of your children, consult with a registered and qualified health professional.

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Stay connected

Join our mailing list to hear more from the FASD Hub, including our monthly newsletters, webinar invitations, and new publications.

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Acknowledgement of Country

FASD Hub Australia acknowledges Aboriginal and Torres Strait Islander peoples as the Traditional Custodians of Country throughout Australia, and we recognise their connections to land, water and community. We pay our respect to their elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples.

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